Welcome to the Internet Home of the Lyme Disease Society at LymeSociety.com!

The Lyme Disease Society is a Pennsylvania-based volunteer group dedicated to advocacy on Lyme disease
(and other tick-borne diseases) education, prevention, research and patient issues.

In Memoriam, Mary M. Halinski (1961-2013), Noted Patient Advocacy Leader,
Lyme Disease Society Co-Founder and Executive Director

Excerpts from 'Words of Remembrance' for his Mom written and delivered by her son Luke at her funeral -

"My Mom's life was a most beautiful Mosaic composed of many pieces: the people who my Mom impacted.  Her life was an extraordinary masterwork of love, with each unique piece, each person, glistening in the special way Mom knew them, helped them, cared for them and loved them.  My Mom radiated a vibrant generosity of spirit and love that will carry on always."

"Most of all, I know that now everyone here has a new advocate for them in heaven."


Mary M. Halinski, 52, of Lansdale, PA, passed away Friday, August 16, 2013, after extended health challenges from pancreatic cancer. She was the beloved wife of Robert Halinski, her husband of 32 years, and an amazing mother, sister, aunt and friend.

CDC Report on Vector-Borne Diseases

The CDC issued a new report on the concerning increase in cases of Vector-borne diseases in recent years, including Lyme and tick-borne diseases.
There are links to the report and also info from the CDC on their expanded case estimates of Lyme disease below.

CDC Vector-Borne Disease Report (outside site)


CDC Estimates on Lyme Disease Cases (outside site)


Cures Act Update: Latest Information on Federal HHS Working Group

Updated information, including meetings and announcements, from the federal HHS Tick-borne Diseases Working Group
established by the 21st Century Cures Act is available at the below HHS website. It is exciting to see the Working
Group underway!

HHS Federal Tick-Borne Disease Working Group (outside site)


Archive From Dec 2016: Victory! Congress Passes Federal 'Cures' Bill Including Tick-Borne Disease Legislation!

The US House and Senate have passed HR 34, the 21st Century Cures Act, including positive Lyme and tick-borne disease language! The bill will now head to President Obama, who has announced support, for his signature. The Cures bill includes language similar and taken from excellent federal Lyme and tick-borne legislation, sponsored by Rep. Chris Gibson, which had Lyme Society input. The language would establish a tick-borne disease working group with public members, including patients, non-profit organizations and clinicians.

Thanks very much to all who helped make this tremendous victory for patients happen! On the House side, Congrats and special thanks to Rep. Chris Gibson and his office for sponsoring the Lyme and tick-borne disease bill, and Chairman Upton and the bipartisan leadership on Energy and Commerce Committee. On the Senate side, Congrats and thanks to Senator Alexander, Chair, and the bipartisan leadership, of the HELP Committee, and special thanks to Senator Casey from Pennsylvania and his office for all of their support for patients and the fight against Lyme. Thanks to all members of the House and Senate who were involved and supportive of the Lyme and Cures legislation! Lyme Disease Society was involved and supported this legislative effort to fight Lyme and tick-borne diseases and help patients from the earlier stages through today's passage. Thanks to all of the groups and individuals in the Lyme disease community who supported this bill and worked on the effort.

Link to a pdf copy of HR 34, 21st Century Cures Act. Tick-borne disease section is Sec 2062. (outside site)

CDC - Lyme Disease Transmission

Link to information from the CDC on Lyme Disease Transmission (outside site)


Lyme Disease Case Statistics

Link to the CDC Statistics on Lyme disease cases (outside site)


Study - Lack of Evidence Behind Treatment Guidelines

Link to Study Published in Archives of Internal Medicine on Level of Evidence Behind
Infectious Disease Treatment Guidelines (outside site)


Link to Reuters article on Infectious Disease Treatment Guidelines Study (outside site)


Tick Removal

Link to the CDC's tick removal guide (outside site)


Note:  The above  links are to external sites.  The information
and content at the linked addresses is outside the control of this site and the Lyme Disease Society.

If you are interested in joining the Lyme Disease Society email list or being involved with our volunteer advocacy work, email LymeSociety@aol.com.

Community Calendar

The Central Bucks Lyme Disease Support Group meets monthly in Doylestown, PA outside of Philadelphia.

Click for more details

Thank you for visiting LymeSociety.com, and we hope you will come back soon.  Let's all work together to fight this disease!