Welcome to the Internet Home of the Lyme Disease Society at LymeSociety.com!
The Lyme Disease
Society is a volunteer group dedicated to advocacy on Lyme disease
(and other tick-borne diseases) education, prevention, research and patient issues.
In Memoriam, Mary M. Halinski
(1961-2013), Noted Patient Advocacy Leader,
Lyme Disease Society Co-Founder and Executive Director
Excerpts from 'Words of Remembrance' for his Mom written and delivered by her son Luke at her funeral -
"My Mom’s life was a most beautiful Mosaic composed of many pieces: the people who my Mom impacted. Her life was an extraordinary masterwork of love, with each unique piece, each person, glistening in the special way Mom knew them, helped them, cared for them and loved them. My Mom radiated a vibrant generosity of spirit and love that will carry on always."
"Most of all, I know that now everyone here has a new advocate for them in heaven."
Mary M. Halinski, 52, of Lansdale, PA, passed away Friday, August 16, 2013, after extended health challenges from pancreatic cancer. She was the beloved wife of Robert Halinski, her husband of 32 years, and an amazing mother, sister, aunt and friend.
Born May 4, 1961 in Homestead, PA and raised in Blue Bell, PA, she was the daughter of the late Joseph and Margaret (Kolasa) Rosko.
In addition to her husband, she is survived by her children, Luke H. Halinski of Lansdale, and Stephanie M. (Halinski) Kensy and her husband, Jonathan, of Lansdale; her brothers, Thomas Rosko, M.D., of Visalia, CA; Christopher Rosko, M.D., and his wife, Susan, of Birmingham, AL; Gregory Rosko and his wife, Monica, of Charlottesville, VA; and John Rosko and his wife, Edie, of Tampa, FL; and sister-in-law, Lorraine Rosko of Blue Bell. She was preceded in death by her brother Joseph Rosko, Jr.
Mary graduated from Gwynedd-Mercy College with a biology degree. She was employed in the pharmaceutical industry for many years, first with Johnson and Johnson and, later, with Merck, retiring as a regulatory chemist in 2007.
Mary was a noted patient advocacy leader. She co-founded and ran the Lyme Disease Society with her son Luke beginning in 2000 and served as Executive Director. Her volunteer work, including on federal and state legislation, impacted the lives of many. Mary was a dedicated member of Corpus Christi Church where she served as Chair of the Pastoral Council and attended daily Mass. She volunteered for many other causes, including Missionaries of Charity, Norristown, and Catholic Relief Services Global Poverty Initiative.
Mary enjoyed many things in life. Mary loved walking her dog, Maverick, watching her favorite TV shows and movies with her family, and playing games, especially Rummikub and video games. She was an avid football fan and loved vacationing with her family in Ocean City, NJ.
Mary’s beautiful spirit will live on with her family and the many people she touched in her life.
Relatives and friends may call between 6 and 8 p.m. Tuesday, August 20, 2013 at Huff & Lakjer Funeral Home, 701 Derstine Ave., Lansdale. The Funeral Mass will be celebrated 12 Noon Wednesday, August 21 at Corpus Christi Church, 900 Sumneytown Pike, Lansdale. Burial will be in Our Lady of Czestochowa Cemetery, Doylestown.
In lieu of flowers, the family requests that contributions be made in Mary’s memory to the Missionaries of Charity, 630 Dekalb St., Norristown, PA 19401 or ‘Thomas Jefferson University Hospital’ (please specify donation to Pancreatic Surgical Research Fund in memory of Mary Halinski) address: The Jefferson Foundation, 925 Chestnut St., Suite 110, Philadelphia, PA, 19107.
Obituaries Placed by Family in Loving Memory of Mary -
Online Edition of NYTimes, August 19, 2013
Print and Online Edition of the Washington Post, August 20, 2013
Print and Online Edition of Reporter (Philadelphia Suburbs), August 19, 2013
Print and Online Edition of Philadelphia Inquirer, August 19, 2013
Print and Online Edition of Times Herald (Philadelphia Suburbs), August 19, 2013
Federal Lyme and Tick-Borne Disease
Advisory Committee Legislation
The Lyme Disease Society is pleased to support HR 610, sponsored by Rep. Chris Smith in the US House.
HR 610 establishes a federal Lyme and Tick-Borne Diseases Advisory Committee. The Advisory
Committee would bring together patients, clinicians, experts and others with government officials to coordinate
and move forward federal Lyme and tick-borne disease programs. Lyme Disease Society has long supported
establishment of a federal Tick-Borne Diseases Advisory Committee and gave input into and actively supported
previous legislation to create an Advisory Committee, including a bill which passed the US Senate
(S 969- 107th Congress).
Contact your US Representative and ask them to cosponsor HR 610. HR 610 would help patients
and the fight against Lyme and tick-borne diseases by establishing a federal Lyme and Tick-Borne
Diseases Advisory Committee.
Link to official House website
and enter zip code to find and contact your Representative (outside link)
Sequester Hurting Medical Research and
The federal budgetary Sequester is in place and hurting federal
public health programs and disease prevention, including for Lyme and tick-borne diseases.
Lyme Disease Society urges an end to the damaging Sequester and supports medical research
and important funding for Lyme and tick-borne diseases.
Read more and take action at Research America's website (outside site) -
Research America! information on Sequestration (outside site)
Tweet in Support of Medical Research, including for Lyme and
using hashtag #CuresNotCuts
Lyme Disease Case Estimate Dramatically Increased by CDC
Many experts, clinicians and patients advocates knowledgeable about Lyme disease
had long contended CDC needed to improve its surveillance. Lyme Disease Society
federal advocacy efforts had urged improved Lyme disease surveillance by CDC for many years.
The new CDC estimate is higher than previous surveillance by a large magnitude:
approximately 300,000 cases per year.
Link to official CDC press release on new Lyme disease case estimate (outside site)
Link to the latest Lyme disease news and media reports using the below RSS feed
Note on above Google News
RSS Feed: The news stories are from an RSS feed provided by Google News using
the search term 'lyme disease'.
The stories and links displayed are not edited, selected or endorsed by this site and the Lyme Disease Society. All stories are automatically
displayed from the Google News RSS feed and not from the editorial control or selection of this site. All links are to outside sites over which
this site and the Lyme Disease Society have no control. The information and content contained in the linked pages may be inaccurate
and is not endorsed by this site and the Lyme Disease Society. The Google News RSS feed is provided for non-commercial purposes.
Link to Study Published in Archives of Internal Medicine
on Level of Evidence Behind
Infectious Disease Treatment Guidelines (outside site)
Link to Reuters article on Infectious
Disease Treatment Guidelines Study (outside site)
Lyme Disease Case Statistics
Link to CDC press release on new Lyme disease case estimate (outside site)
Link to the CDC Statistics on Lyme disease cases under previous surveillance (outside site)
Link to the CDC's tick removal guide (outside site)
Note: The above
Statistics and Tick Removal links are to external sites. The
and content at the linked addresses is outside the control of this site and the Lyme Disease Society.
The Bucks County Lyme Disease Support Group meets monthly in Doylestown, PA outside of Philadelphia.
Click for more details
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